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Dercum’s Disease: Let's create a support group

Chronic Pain | Last Active: 1 day ago | Replies (115)
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@c3p0

I have read a lot of your posts. All I have found. Somewhere I saw you are moving to AZ? If I was in Arizona I would contact Dr. Karen Herbst in Tuscon and make an appointment. I would also try to get into the clinical trial for CBL-514. I don't think it's too late. I tried but my age prevented me from participating. I hope you investigate these options. You have legitimate chances to get some real help. Just read all you can from Dr. Herbst for the most expert advice. I wish you the best of luck in finding some help.

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dougsdercumsdisease | @dougsdercumsdisease | 1 day ago

@ellenbret you may have me confused with someone else as I reside in central Ohio with no plans of moving at this time however thank you so very much for the information on Dr Herbst and the clinical trials. I am 43.5 years of age and would absolutely love to be sorry if the trials as I have these things growing all throughout my body (painful lipomas, Adipose tissue, and hemoglobin’s) it feels like tree roots growing throw out my body making all of my symptoms worse by the day and as my disease worsens my stress, anxiety and depression goes up causing even more inflammation throughout my body and rapid growth / plums of these marble size lipomas fusing together.

I know you cannot provide links but could anyone provide me with more information on tbd clinic trials like where they are taking place this round when the trials start who exactly I can contact to be considered for the trials etc?

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