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How many doctors did you see to get to your NETS diagnosis?

Neuroendocrine Tumors (NETs) | Last Active: Nov 22 10:00am | Replies (20)
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@hopeful33250

@pamela1685
It sounds like the endocrinologist who tested for intrinsic factor antibodies was a remarkable doctor! He was able to predict your future health issues 20 years ago. Is he still in practice?

Yes, I agree, looking good is OK with me as well. I remember talking to one person who complained about it. She felt that she didn't get much sympathy from friends and family because she didn't look like a cancer patient.

I'm glad that you found this community. I hope you will continue to post. You have an encouraging story of advocating for yourself. We all need to hear these stories.

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Replies to "@pamela1685 It sounds like the endocrinologist who tested for intrinsic factor antibodies was a remarkable doctor!..."
pamela | @pamela1685 | Nov 15 10:18am

My former endocrinologist Dr. Kenneth Woeber was the head of UCSF endocrinology when I last saw him 20 years or so ago. He was already in his late 60s or early 70s then, so I'd doubt that he's still in practice. But I think he was working on a paper then about the high incidence of autoimmune atrophic gastritis among those with Grave's since that, too, is an autoimmune disease.

I just read your profile, and was humbled by all that *you're* going through. Thank you for moderating this site, and for all your warm responses despite all your health challenges, too. I hope you're doing well.

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