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Prostate Cancer Metastasis to Peritoneal
Prostate Cancer | Last Active: 4 days ago | Replies (5)Comment receiving replies
Hi Jnewbill 2000
I understand how you must be feeling after receiving this news. I also have metastasis to the peritoneal and hilar lymph nodes. I have attached a link below to my original post. Yes, it is very rare and I was devastated after receiving the news. After being told it was not medically curable I felt a death sentence was in my near future, however I remained positive and started spending two hours a day three days a week in the gym lifting and hitting the treadmill which I had never done before. I started my treatment of eligard and xtandi at the same time and that was nine months ago. I receive the eligard injection every three months and take the xtandi daily. The first three months was very difficult with the therapy side effects and my body being taxed at the gym. When I went for my second injection at three months I told my oncologist I wasn't sure I could handle it, but he very confidently told me I had to keep pushing through it and it would get better. Now nine months in I have lost fifteen pounds, feel stronger, and side effects have not gone away but leveled off and become manageable. Best of all my PSA is < .01 and my cancer is asleep for now. God is good. Stay positive, fight your tail off, pray that God will help you through your journey and be determined you will not let it win. If you do good things will happen.
https://connect.mayoclinic.org/discussion/psa-six-weeks-after-radical-prostatectomy/
Replies to "Hi Jnewbill 2000 I understand how you must be feeling after receiving this news. I also..."
Yes, God is definitely the best tool in fighting cancer. When I was first diagnosed I was fitted with a catheter. After 3 days it was so painful (think of up doig wsomeone with a needle nose pliers clamped down and also someone holding a torch to your junk).
I finally had enough and I told myself I was going to kneel down and say the Rosary. I knelt down and fought to get the first couple prayers out because I was in so much pain. The next thing I knew I was up doing whatever around the house and after I on't know how much time, it finally hit me (I still had a ton on my mind after just being told I was on my way down 4 or 5 days earlier. (I spent 3 days in the hospital after the night I was diagnosed on February 11th, 2023) that I was no longer in pain. I never felt pain from the catheter again other than when I got UTI's every 3 weeks when I had my catheter changed. I had the catheter about 9 1/2 months. I was very happy to get it out not because of pain but because it would save me 20 plus minutes every morning and night.
I have definitely started praying more since having my wake up call. I am doing an Our Lady of Guadalupe Novena which I seriously think is a big part of my recovery after being told I had less than 2 years to live by my more local cancer doctor back in March of this year when I asked her what my prognosis was.
I am now almost feeling completely back to normal, thanks to Magician Sartor.
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Science has made much progress in the years. Your experience is not extraordinary. According to latest research by Xtandi, only 10% has recurrence at 5 years for those who are treated with ADDT + Xtandi. Recurrence does not mean it cannot be treated. So much so some would say that prostate cancer is a chronic disease, like diabetics. That means you can travel, etc. So keep it up and all the best wishes.
Dont mind me. I am just another layman trying to make some sense of the whole thing.