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Shortness of breath: occasional 'bad' days?

Neuropathy | Last Active: 1 day ago | Replies (20)

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@tessie63

Hi Ray. I have recently gone off all pain meds the worst one being Aventyl. I have also gone off pregabalin. None of these drugs do a thing for numbness and the pins and needles caused by this illness. However I am now finding an increase in these symptoms and I am also finding myself a little short of breath at times also along with being more tired. I feel like my neuropathy is spreading in my body. It is in my arms and legs now making them much weaker and I feel pins poking me in my back and chest area and that does worry me. There seems to be nothing that I can do or take to stop the progression of neuropathy. I can’t stand or walk at all without the use of my walker and this is becoming more exhausting every day. There are days when I just feel like throwing in the towel and this is one of them! People say I’m lucky to have no pain and I get that but the mental exhaustion of doing the everyday chores of living and trying to be happy with my life the way it is now is debilitating!

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Replies to "Hi Ray. I have recently gone off all pain meds the worst one being Aventyl. I..."

Hi, Tessie (@tessie63)
You have my sympathy and complete understanding. Even without pain (my situation, too), it can be quite exhausting just trying to do the dozen or so daily chores you once did without giving them a second thought. Being without pain is unquestionably a blessing. Nonetheless …
You have my heartfelt wish for better days!
Ray (@ray666)

Try from Amazon both Doublewood PQQ and a CoQ10 with breakfast. These have stopped most of my PN progression as well as 80% of any chest discomfort.

You have to stand, walk, stationary bike whatever you can do to get the blood moving in your legs. Leg press w weights at the gym really helps me as well.

Also make sure your gym shoes are less than 6 months old.

Also stay away from electrolytes like Gatorade- I’ve found I’m very sensitive as it increases neuropathy for me.

Let me know if that helps. I am thinking of starting a self help group for PN.

PM