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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: Nov 17 8:48am | Replies (111)

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@kayabbott

I have had collagenous colitis for 8 years (celiac for 15). I had 3 months of flares this summer due mostly to high stress and being on low-dose Lisinopril (Ace II) for (new) chronic kidney disease, not blood pressure. I'm 70 and collecting diseases is not a good hobby. The flares tailed off a couple of weeks off the Lisinopril. I've never taken meds for the colitis (partly due to being sensitive to too many with microscopic colitis). I've kept a food journal for 15 years and figured out that I am sensitive to legumes, NSAIDs, gluten, and dairy. I've been low sugar/salt/processed foods for years. I have a high fiber diet; psyllium husk combines insoluble and soluble fiber that helps to bulk unformed stuff and feeds the (mostly friendly) bacteria. Stress has a big impact on GI problems so controlling that, getting enough sleep, exercise, diet, and finding things to look forward to every day is important.

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Replies to "I have had collagenous colitis for 8 years (celiac for 15). I had 3 months of..."

Its such a Journey. I am off nsaids, ssri, PPIs, and statins. We will see if this maintenance level dose does the trick

After having ulcerative colitis for 40 years, my last colonoscopy said I'm in remission, BUT now have collagenous colitis. I think going gluten-free put me in remission from UC. But I'm not 100% gluten-free--ie., can you manage sourdough bread? And GI dr said "keep taking mesalamine" even though I'm essentially normal, bowel-wise. Collagenous colitis seems so rare, no one talks about it. I think food sensitivities are at the root of my issues, since I don't show allergic to any of the food testing. I seem to be developing some upper GI "stuff", regurgitation, etc. A frustrating disease!