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Most people quit their job under Big3?
MAC & Bronchiectasis | Last Active: 8 hours ago | Replies (27)Comment receiving replies
I've been on the Big 3 for 6 years, Inhaled Arikayce for 4 years and recently added Clofazimine. I never had many side effects from any of the medications that prevented me from going to work. Sometimes the symptoms of MAC kept me home a day or so and in my mind I'm thinking how much worse off I'd be had I not been keeping things at bay with the meds.
Replies to "I've been on the Big 3 for 6 years, Inhaled Arikayce for 4 years and recently..."
What. 6 yrs and 4 yrs. Isn’t arikayce expensive. Your dr is ok with being on antibiotics that long
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So glad you "never had many side effects". I am suppose to start Azithromycin and Ethambutol 3x a week for Macrobacterium Avium Intracellure. No cavities or nodules, at least not told I have any.
Six years......is that daily or three times a week?
Is the six years because of MAC alone or pseudomonas with MAC??
I take it you are still on the meds and have not cleared up the MAC or pseudomonas, if you also have pseudomonas??
I ask because you mentioned "how much worse off I'd be had I not been keeping things at bay with the meds."
I have often wondered how others manage if still working, I am retired and MAC diagnosis 10/2022.
Barbara