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@skipeak

I had my thyroid out now 2 tears ago due to Hurthle cancer. It came back in my neck region about 4 months ago as well as moved to my 8th rib. I had focused radiation to both areas in August. Now for the last 4 weeks my leg muscles and joints seem to ache all the time. Not sure of the cause yet. I have a meeting at the Mayo next week for my PET/CT scan to see if the radiation worked. I was going to also ask is these new ache pains part of this health challenge.

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Replies to "I had my thyroid out now 2 tears ago due to Hurthle cancer. It came back..."

I am so sorry to hear all that is happening to you.Thank you for your response. Please send updates. Take care!

I have Hurthle Cell Carcionoma as well, and opted for a total thyroidectomy in June 2023, a decision I came to after meeting three surgeons. She said this was her recommendation because until you get the nodule out, you don't know if it's malignant, and that my Hashimoto's should be gone with the gland out. (The gland can grow back however). I have always battled and continue to battle a significant number of migraine headaches along with muscle and joint pain due to arthritis that I can't seem to get under control. For the headaches, I have been seeing a neurologist and getting treatments. For the other pain points, my Rheumatologist is suggesting a low dose Naloxone since other medications I've tried do not work. I did have extreme pain in my neck about 6 weeks back and my physical medicine doctor said I was having a flair up in my neck and gave me a steroid pack and PT prescription. Hasn't helped and now I'm going to be getting an MRI of my neck. I also have been eliminating gluten (not good for Hashimoto's) as best I can, cutting back on sugar as best I can, exercising more and alternating ice & heat to pain areas. Maybe some of this will help you if you're not already doing it. I am curious, how did you find out the cancer came back, and maybe tell a little bit about your back story, I'd be curious to understand how you got to this point. I know Hurthle Cell is sneaky, and since that's what I have too, I can't help but feel paranoid when something is different with my pain and overall health, especially when I have aches in my bones. I am praying for you and your doctors to help you through this!