Welcome to the NETs Group! Come say hi.

Posted by Teresa, Volunteer Mentor @hopeful33250, Jan 20, 2017

Hello and welcome
Let's pull up our chairs in a circle and check in with each other and talk about how we are doing with our NET diagnosis. Any new tests, meds or treatments going on for you? What about your symptom control? Any concerns you have?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

ladonnagissel | @ladonnagissel | 1 day ago

Hello All .My name is Ladonna I live in Az now so went to seed Doctor with strange symptoms last December .H said was hernia CT scan tumor on pancreas thumb size so had biopsy at was for NETS. Next stop surgery in aug 2024 did with robot asst. small size for opening shorter recovery .Surgery took half of pancreas and spleen to close to tumor . I done ok for a few months now same symptoms are coming back in touch with Doctor office staff not understand what going on. Sad so may look for new place to get care .Costs are high every where .I do feel blessed I am 73 years old