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@jeffmarc

The Gleason score of 10 after surgery means your cancer is very aggressive. Did they ever mention you had intraductal or cribriform? Those make it much more aggressive and pretty much guarantee metastasis will form with a Gleason 9 or 10.

Instead of Dr. Kwon guiding your treatment (he is a urologist not a GU Oncologist) you could go to Mayo and get help from their oncologists or get an appointment with Doctor Scholz in Marina Del Ray California, you can listen to some of his speeches on YouTube, he’s pretty knowledgeable to put it mildly.

You really do need some expert advice on treatment with a Gleason 10. I would recommend you connect up with Ancan.org. They have 2 hour online meetings every week for advanced prostate cancer patients. They send out a newsletter every week that has incredibly helpful information in it about new and existing treatments. They’ve had a number of people that have gone to Doctor Kwon and have not had the best treatments, even though Doctor Kwon gives some great speeches at the PCRI conferences. They can fill you in on the issues people have had with him. They’ve been working with cancer patients for 15 years and really know what’s going on. New people are given first priority and can usually find very up-to-date. New information on what to do with their treatment.

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Replies to "The Gleason score of 10 after surgery means your cancer is very aggressive. Did they ever..."

@jeffmarc, please be careful about telling members what they should do as per the community guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/ Sharing your own experience is fine, but don't tell other members what they should do.

You're right that Dr. Eugene Kwon is a urologist specializing in prostate cancer https://www.mayoclinic.org/biographies/kwon-eugene-d-m-d/bio-20054440

Being a member of Mayo Clinic Comprehensive Cancer Center means Dr. Kwon and colleagues work together with their prostate patients to make treatment choices based on medical evidence and patient preferences. Mayo Clinic urologists, oncologists, radiation oncologists, pathologists and radiologists rely on strong collaboration and multidisciplinary discussion to provide comprehensive care to each person seen with prostate cancer. Read more about Care at Mayo Clinic here: https://www.mayoclinic.org/diseases-conditions/prostate-cancer/care-at-mayo-clinic/mac-20353097