Does anyone have chondrosarcoma?

My daughter (13 years) is diagnosed with Chondrosarcoma. Doctors said it was a second stage slow groving, located at her L4 vertebra, and after surgery to remove it and add a titanium cage, another five-millimeter tumor was noted in the soft tissue on the left side. It was stated that her L3 nerve was damaged during its removal. It was stated that there was no other remedy, and the remaining parts had to be radio-treated. State whether there is any other remedy for this

@jinna78, welcome. Please note that Mayo Clinic Connect is a public forum for patients and family members to connect and support one another. I have removed the medical records from your post to protect your daughter's privacy. If you would like to seek the medical advice of Mayo Clinic experts, you can request a consult and send them her records over a secure platform. Here's how to request a medical consult http://mayocl.in/1mtmR63

As a mom, I can imagine how hard this is for you to see your daughter dealing with chrondrosarcoma. Has she already had radiation therapy after surgery or is that the next step?

I have 5 secondary dedifferentiated chondrsacoma tumours in my right humorous and left thigh/hip. Primary in tight femur removed by surgery. I have the IDH1 gene mutation and am on a clinical trial of a drug called Tibsovo. It is too early to know if it is working or not. It is usually used for leukaemia.