My Gleason score is 7 - 3+4. How long can I live without treatment?

Posted by mayoclinicadvice23 @mayoclinicadvice23, Jun 11, 2023

My Gleason score is 7 - 3+4,. How long can I live without treatment? Since I decided not to get any treatment, because of horrible side effects, I was wondering, if someone who experienced the same condition, will share his experience with me.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@cekkk

Whew! I finished going over my urologist's medical records which I had requested so I could give them to another physician for a second opinion as I was not comfortable with the first doctor. I wouldn't pretend to say I understood much of it but I did gather a few things. The bottom line for me is that my Gleason score is 4 - 3. And cancer cells only appeared in two of 12 samples. My inclination is to monitor it but that may be altered when I see, actually, an NP in a few weeks. I'm nearly 82. Well I have my problems there is nothing that is likely to take my life. So even though I was told that this is a 10-year cancer, there's a good chance I've got another 15 years to go. At this point I'm having pain in my right leg 24/7, albeit mild. I have a foot drop. So I have enough problems such that I really want to avoid any procedure that might result in lifelong negative side effects. I'm always anxious to receive comments, even suggestions. And I would offer this, having read several of members posts. It would be helpful to state your age.

Jump to this post

A few thoughts to offer. It sounds as if you were given a standard systematic 12 core biopsy, which takes 12 samples from different zones of your prostate. I would think that having 2 of those cores positive with cancer indicates a fairly sizeable lesion or more than one lesion. What is your PSA? Have you had a 3T MRI. The MRI will shed much better light on the size and location of your tumor or if there is more than one lesion. A genetic test of the tumor tissue such as Decipher or Oncotype dx would shed light on how aggressive the Gleason 4 cells might be. Your urologist could and should be ordering these kinds of tests for you and advocate for yourself that they be done, if this isn't the case. This kind of additional information will go a long way in helping you make a better informed decision on what to do for your particular case.

REPLY
@pdcar4756

A few thoughts to offer. It sounds as if you were given a standard systematic 12 core biopsy, which takes 12 samples from different zones of your prostate. I would think that having 2 of those cores positive with cancer indicates a fairly sizeable lesion or more than one lesion. What is your PSA? Have you had a 3T MRI. The MRI will shed much better light on the size and location of your tumor or if there is more than one lesion. A genetic test of the tumor tissue such as Decipher or Oncotype dx would shed light on how aggressive the Gleason 4 cells might be. Your urologist could and should be ordering these kinds of tests for you and advocate for yourself that they be done, if this isn't the case. This kind of additional information will go a long way in helping you make a better informed decision on what to do for your particular case.

Jump to this post

I had an MRI after the biopsy. If he told me my PSA number, I don't recall and didn't see it in the myriad of information in the records. I appreciate your comment on the two samples. I had no idea what that portended. I'll ask for an oncologist referral when I see the NP in a few weeks.

REPLY
@cekkk

I had an MRI after the biopsy. If he told me my PSA number, I don't recall and didn't see it in the myriad of information in the records. I appreciate your comment on the two samples. I had no idea what that portended. I'll ask for an oncologist referral when I see the NP in a few weeks.

Jump to this post

I would urge you to become as knowledgeable as you can on your disease. Ultimately the decisions to be made are going to land in your lap. When I was hit with my news in mid March this year, I spent the next 3 months learning all I could about this disease. If you've not heard of the Prostate Cancer Research Institute (pcri.org) I'd strongly urge you to visit their website. They have a wealth of videos and tutorials geared for folks like us that are well presented, easy to understand, and tremendously helpful. I probably watched well over 150 hours of videos and compiled over 100 pages of handwritten notes on my journey of learning. It will be time well spent on your part, unless you plan to just leave it up to some doctor to decide for you. Take a look at this website. It is superb in my opinion. Best wishes to you.

REPLY
@pdcar4756

I would urge you to become as knowledgeable as you can on your disease. Ultimately the decisions to be made are going to land in your lap. When I was hit with my news in mid March this year, I spent the next 3 months learning all I could about this disease. If you've not heard of the Prostate Cancer Research Institute (pcri.org) I'd strongly urge you to visit their website. They have a wealth of videos and tutorials geared for folks like us that are well presented, easy to understand, and tremendously helpful. I probably watched well over 150 hours of videos and compiled over 100 pages of handwritten notes on my journey of learning. It will be time well spent on your part, unless you plan to just leave it up to some doctor to decide for you. Take a look at this website. It is superb in my opinion. Best wishes to you.

Jump to this post

I will do that. Thank you. Ultimately we have to be our own advisors these days.

REPLY
@colleenyoung

@ozelli, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

- Prediction of metastatic prostate cancer by prostate-specific antigen in combination with T stage and Gleason Grade: Nationwide, population-based register study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6988964/

Jump to this post

Hello Colleen,
First off, thanks for inviting me to join this page. It took me longer than it should have because I am having trouble getting the Mayo app on my phone for some reason.
I was diagnosed February 11th, 2023 after a slip on the ice and doing the full splitz and 3 days later me stoll ended up full of blood. When I was diagnoes, my PSA was 455.89 and they told me if I had not gotten in when I did, I would have been dead within 2 days.
Fast forward 1 year of chemo, I asked my St Cloud cancer doctor what my prognosis was. She said I had at very most, two years to live. That is when I asked about getting into the Mayo. She said she could get me a reference and within 1 week I had a call from the Mayo. Dr Sartor is AWESOME! I am now feeling almost completely back to normal.
I come back into the Mayo this coming Monday, the 18th and Tuesday the 19th and I do think my scans are going to come out very favorable.
I look forward to them and to hopefully figuring out a way to show my appreciation to Dr Sartor.

REPLY

I am 71. I have taken this journey with others in my role as Episcopal Priest. I have know many men who have opted not to have surgery due to their age. Most of them far outlived the prognosis. I had one parishioner who was 89 at time of discovery and lived to 98.

This is your life, your decision. This is my OPINION: if the 2nd doc says surgery will prolong your life 15 years, and without it you may have 5, I would opt for the surgery. Being 82 is not what it once was. And living to 95-100 is not as rare as it once was.

With that stated, this is your decision with your life. If you feel the surgery would negatively impact the remaining years you have, then I'd think it over carefully.

REPLY

I wish anyone dealing with any kind of cancer or suffering in any way the best and every night I pray for anyone suffering from any disease, especially cancer.
I wish everyone could have the kind of success I am experiencing.
I will say the 1st thing is to use the PO outlook. Positivity Only. Tell yourself you are not going to let it get the best of you.
The next is to not lose faith. I really think my Our Lady of Guadalupe Novena I am doing is a big part in my recovery. When I was admitted to the Mayo in March, some of the first things I heard was 'WOW, we did not realize ANYONE could have so much cancer'. One thing that both could be used for or against me, many of my doctors through my journey have said I am the healthiest person they have ever seen(thanks, Dad and Mom), but as my St Cloud doctor said, that gave the cancer a 'perfect environment to thrive and spread like wildfire.
I have said all along I could not let it take me because I could not let my parents or siblings bury another kid or sibling, after losing 2 of my older sisters in the last 6 years. I come from a family of 10 kids, 6 boys, 4 girls and I am number 6 in the lineup.

REPLY
@cekkk

I had an MRI after the biopsy. If he told me my PSA number, I don't recall and didn't see it in the myriad of information in the records. I appreciate your comment on the two samples. I had no idea what that portended. I'll ask for an oncologist referral when I see the NP in a few weeks.

Jump to this post

Purchase Dr Patrick Walsh's 5th Edition book : " Guide to Surviving Prostate Cancer " . It will be the best mooney you ever spent . It will educate you A to Z about prostate cancer , Testing , what the tests mean , Different Treatments , Surgery , Radiation , Focal Therapies and on and on
You have to be your own advocate -- but with the self education plus help from this forum members .

REPLY
@clandeboye1

Purchase Dr Patrick Walsh's 5th Edition book : " Guide to Surviving Prostate Cancer " . It will be the best mooney you ever spent . It will educate you A to Z about prostate cancer , Testing , what the tests mean , Different Treatments , Surgery , Radiation , Focal Therapies and on and on
You have to be your own advocate -- but with the self education plus help from this forum members .

Jump to this post

Totally with you on self advocacy.

REPLY
Please sign in or register to post a reply.