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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 12 hours ago | Replies (7049)

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@archie2

Hi- I’m glad that you have cognitive ways to deal with your pain, but honestly, such approaches have never worked for me. Is there a cognitive/ emotional component to pain? No doubt, but understanding this has never been much help for me.
The doctors at Mayo tell me that pain pump does NOT reduce AA pain- it is for radicular pain only—a Spinal Cord Stimulator may be better. At this point, treatment alternatives are empirical only- does it help?? Yes/no… if Yes, then let’s do it big time.*** Over time, since te 1970’s I have been a lab rat for every new drug/combo/method that has come along. I remember elavil- Prolixin combo-/ and sitting in my front yard and thinking “if I have to live like this it’s just not worth it.” Neurontin (Gabapentin) is another drug that totally messed with cognition and personality.
What am I saying? Be your best advocate-you seem very articulate. Remain positive about possibilities, KEEP A JOURNAL- more helpful than you can imagine. Be open for change— the JOURNAL will help you know where you have been. Always take a friend/spouse into meetings. Set goals for yourself and be brutal when reviewing results. We’re in this together— God bless you.
***I am getting an SCS - Boston Scientific, in a few weeks, just increased my Medtronic intrathecal pump output 15%, and increased the number of bolus deliveries 30%.

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Replies to "Hi- I’m glad that you have cognitive ways to deal with your pain, but honestly, such..."

So, have you gotten any pain relief from your pain pump? 've had one for a year and a half with no relief. I've had it's output increased more times than I can remember. I stopped having it increased when it started giving me bad side effects. Now, I am having it dialed back, with the intent of having it removed. I had the first trial with morphine. No relef. The second trial was with hydromorphone. Pain dropped from an 8 to a 2. I was certain that I was going to have this amazing relief...but no go. Pain is daily at a 7-8, except when I try to do ANY exercising. Then, it ramps up to 8-9.
I tried to get a trial of a different, updated SCS, but the scar tissue would not allow the paddle leads to be placed in the sweet spot. Whar drug iin your pain pump currently. Hope you have success with your SCS trial. Keep us updated.