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I’ve been turned down as well and felt even more discouraged and depressed. Our family has a long history of being treated at Mayo and was hoping I could have other options rather than an anti-epileptic and amitriptyline, either in addition to or instead of. Possibly something along the lines of neuro modulation. I wish they would offer virtual visits to individuals which at least could address dietary, supplement, advice on how to keep this from progressing, and specific exercise concerns/recommendations for those diagnosed with idiopathic small fiber neuropathy; however, if Mayo neurology turns you down, no other department will see you, either in person or virurtual, such as integrative medicine. It feels like those of us with this distressing condition have to fight not only the pain and depression, but fight for appointments and treatment options tailored to us as individuals. For a condition affecting 30 million Americans, there is a sad lack of funding or interest in PN. It may not literally take your life but it can take your life in many other ways.
Welcome @bensdf, Thank you for sharing your journey with neuropathy and the different surgeries that you have had. I think it can sometimes be difficult to get an appointment at Mayo due to the shear number of patients applying and the limited number of appointments that are available. I wouldn’t give up. Have you tried getting a referral from your doctor or making an appointment yourself?