1. < Osteoporosis & Bone Health

Has anyone e lost bone mass while on Forteo?

Posted by redlo @redlo, 3 days ago

My Dexa scores dropped 4% I went from negative -2.9 to -3.5 in 6 months same machine different technician. Only eem on Forteo 4 months. Very worried.

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mayblin | @mayblin | 2 days ago
In reply to @redlo "Thank you for responding. You are correct. My original post was -2.9 to -3.5 I in..." + (show)
@redlo

Thank you for responding. You are correct. My original post was -2.9 to -3.5
I in error, was comparing my previous - 2.9, which was my total average Lumbar score. This new scan broke out level L1 L 2 L 3 and 4 and gave me a total average lumbar score of a negative 3.1 with a negative 4%*
decrease in bmd (with an asterisk.)
I mistakly pick the -L4 of -3.5. The previous Dexa only gave my the lumbar average(-2.9)
I did get CTX and P1NP before Forteo but I had just got off of 8 months on Fosamax.So I am not sure how to interpret the result. CTX 99, P1NP 19.8 I go in for my blood work tomorrow.,but I can't get Into Dr until December .
Love this group. My primary Dr actually laughed at me when I requested CTX and P1np. I had to request a referral to endocrinologist who ordered it but did not hold much stock in the results. Could not even tell me if my numbers were good or bad.It was Dr McCormick that told me to demand off Fosamax and get on Forteo or Tymlos.

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Thanks for sharing! I think your set of "baseline" btms is in line with what's expected after 8mo on fosamax. The question now is how soon and in what magnitude forteo can turn this low bone turnover state around. There might be a delayed effect. Your btms will tell the treatment response in the absence of other useful tools during early stage of treatment.

The 4%* drop in bmd is hard to fathom since there is a residual effect of fosamax in place plus effects from 6mo forteo. An average patient with osteoporosis generally don't have that kind of rate of decrease in bmd in short periods of time even in the absence of an osteodrug. Your plan of getting a DXA after 12mo on forteo is a sensible one.

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