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How many doctors did you see to get to your NETS diagnosis?
Neuroendocrine Tumors (NETs) | Last Active: Nov 22 10:00am | Replies (20)Comment receiving replies
Wow, I'd suspected that my gastric symptoms were caused by NET but wasn't sure, so it's very validating to learn that they're very common among us!
And thank you for the book recommendation, "Good Looking Cancer!" Haha, all things being equal, it's better to look good than not! : ) I'm definitely ordering that book. I'm SO glad to have found this community.
My autoimmune atrophic gastritis was diagnosed by an endocrinologist who was treating me for my Grave's disease. He tested me for intrinsic factor antibodies. When I tested positive, he told me I had atrophic gastritis, and that I will eventually develop pernicious anemia due to B-12 deficiency, and possibly gastric cancer. All of these have come true. It's pretty amazing that he predicted all this 20 years before I had any symptoms, without an upper endoscopy.
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@pamela1685
It sounds like the endocrinologist who tested for intrinsic factor antibodies was a remarkable doctor! He was able to predict your future health issues 20 years ago. Is he still in practice?
Yes, I agree, looking good is OK with me as well. I remember talking to one person who complained about it. She felt that she didn't get much sympathy from friends and family because she didn't look like a cancer patient.
I'm glad that you found this community. I hope you will continue to post. You have an encouraging story of advocating for yourself. We all need to hear these stories.