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@suzystation

My husband diagnosis came quickly. He passed out on Dec 11, 2022 and was rushed to the hospital. Unbeknownst to me, had had suffered from diarrhea and was also bleeding internally. He thought it was somehow related to the prostatectomy he had in March 2022. Two endoscopies and colonoscopy done at the hospital and he was referred out to a surgeon. Initially, they thought it was a GIST tumor but when the pathology came back, his surgery was canceled so that could run all the test for neuroendocrine tumors- labs and Pet CT CU64 Dotate. He had partial gastrectomy ( duodenum bulb) on December 29, 2022. He follows up with a NET oncologist ( was 6 months) - for labs CBC, CMP, serotonin, pancreastatin, 5-HIAA and a CT). Diagnosis/ treatment in one month. An anomaly, from my understanding, in the neuroendocrine world . His surveillance is now moved out to yearly testing with the caveat to call if become symptomatic.

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Replies to "My husband diagnosis came quickly. He passed out on Dec 11, 2022 and was rushed to..."

What a terrible ordeal that your husband has been through! I've read that NET is often discovered very late because many of us have no symptoms until the situation is dire. I'm glad that he's under the care of a good NET specialist, and hope that the worst is behind him. My very best wishes to both of you.