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How many doctors did you see to get to your NETS diagnosis?
Neuroendocrine Tumors (NETs) | Last Active: Nov 22 10:00am | Replies (20)Comment receiving replies
@pamela1685
So many of us with this diagnosis can relate to what you said about slow digestion, weak appetite, weight loss, etc. It seems to be part of NETs.
I'm glad to hear that you will be having regular follow ups to keep up with the tumors and have them removed.
Yes, NETs patients are often told about how good they look. There is even a book written on this topic called, The Good Looking Cancer. Here is a link to the book description.
--The Good Looking Cancer
https://www.amazon.com/Good-Looking-Cancer-Neuroendocrine/dp/1731358687/ref=sr_1_30?
How was the autoimmune atrophic gastritis diagnosed? By an endoscopy or other means?
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Wow, I'd suspected that my gastric symptoms were caused by NET but wasn't sure, so it's very validating to learn that they're very common among us!
And thank you for the book recommendation, "Good Looking Cancer!" Haha, all things being equal, it's better to look good than not! : ) I'm definitely ordering that book. I'm SO glad to have found this community.
My autoimmune atrophic gastritis was diagnosed by an endocrinologist who was treating me for my Grave's disease. He tested me for intrinsic factor antibodies. When I tested positive, he told me I had atrophic gastritis, and that I will eventually develop pernicious anemia due to B-12 deficiency, and possibly gastric cancer. All of these have come true. It's pretty amazing that he predicted all this 20 years before I had any symptoms, without an upper endoscopy.