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Myocarditis & unstable hypertension

Post-COVID Recovery & COVID-19 | Last Active: Nov 27 9:20pm | Replies (21)

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@blessedsista24

Wow I've had this going on for almost a year now can't work because fear of collapsing and it started with syncope I've had every heart test done and all normal for age 59 but had covid in 22 for 23 days.
My Unbalanced walking is the worst 😫 ever my ears are perfect 👌 I found out I do have neuropathy in legs and hands. A b d vestibular hypofunction.
Physical therapy dr noticed me getting dizzy standing up and asked if this happens regularly and I said yes.
He took BP sitting down it was 145/92.
He had me standing and took it and it dropped to 119/79 heart rate increased. Trying to get in touch with primary but she seems unconcerned ugh I'm tired of Dr's.
Trying to get on w Im trying to get on with Mayo clinic.

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Replies to "Wow I've had this going on for almost a year now can't work because fear of..."

Dizziness, is a weird symptom from my experience…I first got it with stiffness and pain in back of the neck over 40 years ago, when dr. said it was ‘a virus’, and got a purpose made collar made for it as it would return for say a week then off again. Then 15 years on got worse, with seizures that were looked into ( brain tumour, epilepsy etc ruled out), and drs., and later chiropractors, decided it was due to trapped/ squeezed nerve as atlas bone was small and vertebrae became disaligned, and muscles around became inflamed trying to protect site. So lots of dizzines that I got used to, and could differentiate into vertigo with short head spin as moved neck awkwardly ( eg taking clothes out of tumble drier), and instant grab to hold onto something, other times it’s like walking on a boat deck on a rough sea, or being drunk ( without the gaiety).. lasts for minutes while I walk around the house holding onto furniture, or an arm. I have learnt over the years what tends to bring the dizziness on and now sit down to chop veg., have a small pillow in car ( even cinema) etc. Then drugs will do subtle versions: beta blocker bisoprolol had real head over heels spins like falling of a huge cliff; Bendroflumethiazide a rough sea. Strangely I don’t associate the postural hypotension with dizziness, but that might be because I’m used to it, I just feel a drain in energy in the upper arms like a huge magnet coming into play, and I have to sit down immediately ( even lie down on shop floors). Perhaps you should try to get a tilt table test to see what is actually happening to your BP on standing and staying standing for up to 15/20 mins. You could try a NASA lean test at home with a BP monitor, but I know that didn’t pick up my PH , I just thought I’d got POTS. I always find it useful to keep a daily health diary recording symptoms and when what you were doing etc, align with Bp/HR and in my case as diabetic too blood glucose levels ( as that can cause wobbly dizziness). So neck position watching tv, reading, on laptop, or cooking etc, what you have eaten/ drunk, household tasks, exercise etc…you will probably find patterns…useful for yourself to try modifications but also to show drs. Lastly try a very gentle McTimoney trained chiropractor to manipulate your spine, I go every 6-8 weeks, to align and loosen up vertebrae, plus ribs, hips etc. to reduce dizziness!