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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: May 13 7:20pm | Replies (77)Comment receiving replies
Replies to "I have also been diagnosed with DIPNECH and have probably had for 20 years. I have..."
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@marciamiller Hey Marcia, I am on the 3 times a day, self-administered injections. I chose that route initially to see what side effects I might get. I figured they would be obviously easier to stop than having the drug in my system for almost a month with the I.M. version. I found my side effects to be somewhat mild. A slight change in my taste buds, and a little bit of hair loss. The worst has been overwhelming fatigue. I literally could sleep for 12 hours at a time. I'm hoping if I go to the I.M. version that will get better. I've been told it most likely will. The shots have helped with the constant cough and throat clearing. That has been a blessing. Hope this helps. 💕