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Neuropathy | Last Active: 14 hours ago | Replies (11)
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@ersingh the doctors think I had paraneoplastic syndrome as an autoimmune reaction to my breast cancer. It preceded diagnosis of cancer and my tumor was gone two months when I got actually tested, so too late. Main symptom was extreme nystagmus.
I am ten years out from cancer but reexperiencing quite a lot of nystagmus (along with increased nerve pain in face, with numbness, going into neck and down) and last week had the full paraneoplastic panel of blood tests. I am mainly interested in anti-Ri and anti-Yo which are related to breast cancer.
Replies to "@ersingh the doctors think I had paraneoplastic syndrome as an autoimmune reaction to my breast cancer...."
That's rough. Sorry you are going through this.. Get well very soon.
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I hope your test results are okay and that you are doing well. It is frustrating to hear that the nystagmus doesn't get better. The new eye movement problems are harder for me to figure out how to work around than mobility issues are. Any suggestions/hacks on how to stay productive at work with nystagmus and double vision? I have made the text on my screen enormous, adjusted the brightness and color of the monitor, and am starting to use a voice to text typing app, but don't know more than that. Any suggestions for this or driving? I am starting to give up driving at night which is very limiting with high school kids.