Side Effects of Evenity?

Posted by bradford14design @bradford14design, Nov 4, 2024

I had my 11th injection of Evenity last week. I asked the nurse if any other patients receiving Evenity complained of side effects. He said no. I find this very hard to belive. Would love to hear from those who have experienced side effects.
Mine were mostly felt 12 days after the shots.
Foggy brain for 2-3 days
Low energy
Off balance
Sleep issues
Itchy arms- one time after shot
Red face- a few hours after the shot

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I had 11 injections of Evenity and had the following side effects:
1. Pain in some joints in my fingers.
2. Insomnia ( never had any issues sleeping before Evenity)
3. Increasing hair loss
4. Hoarseness in my throat that you could hear in my voice.
5. Right hip pain that continued to get worse.

My bone density showed good results in the spine, but not much improvement elsewhere. I stopped Evenity after the 11th shot this past August and all of my symptoms have gone away except the hip pain. The hip pain has gotten worse to the point that I have trouble walking. I did have an X-ray back in May when the pain was intermittent and not debilitating, but it only showed a small amount of arthritis. I have an appoint next week with an orthopedic doctor who specializes in hips. I am hoping he can figure out what is going on. My pain has increased considerably since the last Xray.

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Profile picture for lidiad @lidiad

I had 11 injections of Evenity and had the following side effects:
1. Pain in some joints in my fingers.
2. Insomnia ( never had any issues sleeping before Evenity)
3. Increasing hair loss
4. Hoarseness in my throat that you could hear in my voice.
5. Right hip pain that continued to get worse.

My bone density showed good results in the spine, but not much improvement elsewhere. I stopped Evenity after the 11th shot this past August and all of my symptoms have gone away except the hip pain. The hip pain has gotten worse to the point that I have trouble walking. I did have an X-ray back in May when the pain was intermittent and not debilitating, but it only showed a small amount of arthritis. I have an appoint next week with an orthopedic doctor who specializes in hips. I am hoping he can figure out what is going on. My pain has increased considerably since the last Xray.

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@lidiad it's funny, Evenity is the only med out of three I have taken that did not cause hair loss! My bangs started to grow again...Now on Reclast I seem to be losing again!

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Profile picture for windyshores @windyshores

@lidiad it's funny, Evenity is the only med out of three I have taken that did not cause hair loss! My bangs started to grow again...Now on Reclast I seem to be losing again!

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Oh no, I just had an infusion of Reclast. I hope I don’t lose more hair.

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Profile picture for lidiad @lidiad

Oh no, I just had an infusion of Reclast. I hope I don’t lose more hair.

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Oh gee @lidiad that was not my intention. Noone else I know has lost hair on Reclast and it isn't a listed side effect. I was just saying we are all so different. It could be a delayed reaction to Evenity since I have only had 2mg Reclast. I have lupus which could be an explanation too. So sorry!

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Profile picture for windyshores @windyshores

Oh gee @lidiad that was not my intention. Noone else I know has lost hair on Reclast and it isn't a listed side effect. I was just saying we are all so different. It could be a delayed reaction to Evenity since I have only had 2mg Reclast. I have lupus which could be an explanation too. So sorry!

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No worries 🙂

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Did anyone gain weight (5-7 lbs) on Evenity and lose it easily after they finished the 12 injections?

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I have jyst seen this comment so i know it is back in 2024. I have taken 3 months of evenity so far. I have RA and taking tocilizumab injection as well. I feel really poorly and think it may be the evenity. Did you continue to take it? Xx

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Profile picture for lidiad @lidiad

I had 11 injections of Evenity and had the following side effects:
1. Pain in some joints in my fingers.
2. Insomnia ( never had any issues sleeping before Evenity)
3. Increasing hair loss
4. Hoarseness in my throat that you could hear in my voice.
5. Right hip pain that continued to get worse.

My bone density showed good results in the spine, but not much improvement elsewhere. I stopped Evenity after the 11th shot this past August and all of my symptoms have gone away except the hip pain. The hip pain has gotten worse to the point that I have trouble walking. I did have an X-ray back in May when the pain was intermittent and not debilitating, but it only showed a small amount of arthritis. I have an appoint next week with an orthopedic doctor who specializes in hips. I am hoping he can figure out what is going on. My pain has increased considerably since the last Xray.

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@lidiad I had my 10th injection two days ago. Early on I experienced muscle twitching which eventually passed. Throughout treatment I’ve had muscle and joint pain, some sleep disturbances and fatigue. Bouts of fatigue have been my most troubling side effect. But all side effects have been manageable. Although just after my most recent injection my lower back, “went out” and I am currently experiencing severe muscle spasms and pain. This may or may not be due to injection, just coincidence and bad timing.

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Profile picture for artistel81 @artistel81

@lidiad I had my 10th injection two days ago. Early on I experienced muscle twitching which eventually passed. Throughout treatment I’ve had muscle and joint pain, some sleep disturbances and fatigue. Bouts of fatigue have been my most troubling side effect. But all side effects have been manageable. Although just after my most recent injection my lower back, “went out” and I am currently experiencing severe muscle spasms and pain. This may or may not be due to injection, just coincidence and bad timing.

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@artistel81 I did eventually get a cortisone type shot into my hip about a year ago and the hip pain never came back. I hope your pain subsides soon. If it’s severe I would contact your doctor. They may tell you 10 shots is enough. I did some research and 12 shots really isn’t required to see results.

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Profile picture for lidiad @lidiad

@artistel81 I did eventually get a cortisone type shot into my hip about a year ago and the hip pain never came back. I hope your pain subsides soon. If it’s severe I would contact your doctor. They may tell you 10 shots is enough. I did some research and 12 shots really isn’t required to see results.

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@lidiad thank you so much for your prompt reply. I appreciate that I plan to write my Dr in my chart. I think it is important to let her know. I have a lower back issues throughout my life perhaps once a year or every other year my back goes out so to speak, but this seemed a bit more than coincidence that this happened just after my shot. Thanks again for your feedback.💕

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