Thank you so much for the quick response. The high BP was a significant factor in determining the myocarditis. High, I mean 220/130 & hospitalized for 8 days w/ viral myocarditis (abnormal echo & abnormal cardiac catherization & ekg) which may have been caused by covid. My pulse rate is about 60-65 & DOES NOT fluctuate wildly. When I take BP meds to bring down the bp it can drop too low. The Dr's have no explanation now as to why bp keeps spiking even though the myocarditis is improving. I get very tired & must rest much more than usual. Exercise tolerance is low & I was walking 1 hr/day. My BP doesn't drop upon standing as is common in POTS. It's from the medications. One day I can be 180/110 & the next day 70/40.
ALL of my blood work is normal even my kidney function.
At this point I can't rule out anything. I will keep a diary as u have recommended. Maybe i have a different form of POTS & Md's just not recognizing it due to the myocarditis. Their thinking 1 way & it may have morphed into Pots. I also contacted the mayo clinic 2 c if I can get seen by a MD there. I do have a history of hypertension but well controlled until the myocarditis.
I would appreciate the website u mentioned on dysautotomia/long covid. I have had covid 3x even though I was vaccinated. Let's keep in touch as we can aid eachother in our ongoing long covid. I hope u feel better & have a full recovery!