Hello there,
I am new to this group but at 76 I tried to get out of bed one morning about six years ago and the bedroom ceuling literally was spinning round, I stood up lost my balance and fell back on the bed after few minutes I finally tried again and hanging onto the walls, kitchen tables etc.. I made it to the washroom and hanging on to the sink I found some relief all the while my head was spinning.
Later on that morning I decided to go get a coffee from a coffee shop and walking or actually staggering because my balance was way off I made it to the store a couple of blocks away drawing curious looks from passersbys who probably thought I was severely drunk first thing in the morning!
Later on that day I bought a cain and called my neurologist for an appointment.
She said after examining me and I quote "my mother has the same thing and if your balance or condition doesn't improve in two years you're stuck with it"?
I've had several ear and throat specialist doctors examine me and they all eliminated ear as cause of my imbalance, I am OK driving a car, watch TV, and short walks etc.. all activities that don't require extended walking otherwise I use a Cain and for longer walks I use a walker.
About a year and a half ago I finally got a new neurologist and after some tests she determined that the nerves in my feet do not connect to my brain (nerve deceise)