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MAC patients who have taken antibiotics

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (30)

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@debregecz

Barbara, yes, I only started the antibiotics this year. The nodule that grew was one I had for several years and had been slowly growing. My husband died suddenly of a heart attack. My MAC has been confirmed for years but once the one nodule grew to a concerning size, I was referred to the ID MD. I took the Princess cruise from Boston. I typically go on Princess or Holland America. When I have coughing fits, I simply acknowledge I have a lung disease, but I am not contagious. If they ask what it is, I just tell them MAC and if they are interested to look it up. I don't bother trying to explain. There are lots of tour options out there. Even single tours! I am looking at Peru and the Galapagos, National Parks Tours, and hopefully London/Paris. My treatment ends 4-08-2025 hopefully I am MAC free then!!

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Replies to "Barbara, yes, I only started the antibiotics this year. The nodule that grew was one I..."

So it was somewhat a watch and wait for you with not having started the antibiotics until now. It appears slow growing in us before we learned of it and slow growing, if we are lucky, after having learned of it, BE/MAC. Wishing you good results on the antibiotic regimen.
Loss of that magnitude, 50 years of marriage, is life changing. With all my losses I found that as long as I could find events or instances surrounding it that I was grateful for, in spite of the heartbreaking loss, I managed it all better.
Got it, keep it simple "don't bother trying to explain."
Yes I have quickly read about the single tours. What fun that could be with the right group.
Hope to hear you say at sometime: 'I'm in Paris' etc. etc.
Barbara