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← Return to Small fiber neuropathy?
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Hi Steve - do you mean "get up" in the morning, or get up out of a chair? I definitely feel bad in the mornings. I rarely feel rested, and it takes a while for my body to adjust from sleeping to active. Then the dizzy spells start. So I find that I don't really feel well enough for dr appts, exercise, etc until at least late morning. This is so different from the person I used to be. It also means traveling has become impractical. I've traveled alone to NYC to visit my sons for the past 10 years. After my last trip, 18 months ago, I said "no more". I was sick for days. While in NY, I had dizzy spells, and bouts of diarrhea - in public places. The old me is gone, and the new me is controlled by pain, weakness, fatigue and my autonomic nervous system. If I need to know when the changes occurred, I can just look at my Facebook memories, or my old calendars, to see how much my life has changed. I am 64.
Wow, I'm really down this week. I do a remarkable job of getting through life with a decent attitude. Sometimes, like now, I do give in to self pity.
Replies to "Hi Steve - do you mean "get up" in the morning, or get up out of..."
I am also 64. I have not had the debilitating dizziness with my SFN, but I had been diagnosed over 30 years ago with Ménière's disease right after having my
daughter. I understand what you are going through. My SFN happened so rapidly, that I feel like it's not even my body. I don't know what will happen next. Gabapentin helps with the burning, but my back pain is awful at times. I am just wondering if medications could also be causing some dizziness? I cannot lower my dose because the burning feeling is awful in my hands without it. I also just found out I have osteoporosis in my spine and arthritis. I was very active up until July of this year (my symptoms started at the end of May). It has been very overwhelming and depressing because my neurologist did not believe me; he told me I did not even have neuropathy. The biopsy was ordered by the rheumatologist, so now I feel validated. Still, I have to find another neurologist.
I am very depressed at times. I think you replied to me on another thread. How do you stay positive?
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Sorry I didn’t make that clear…I mean get up in the morning…I feel like a 62 yr old in an 80 yr olds body.
I also find going out to appt’s, shopping etc is becoming more difficult…and the nervousness associated with it because I’m not “ right”. I just turned down a European River cruise for next year because I’m afraid what I’d feel like.
It’s hard to remain “up” when it seems like I’m declining. I wish you well.
Steve