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Small fiber neuropathy?

Neuropathy | Last Active: Nov 16 11:59am | Replies (125)

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@stallen

Hi…I have neuropathy…also with some autonomic involvement…I’m 62. My balance has declined and fatigue/lack of energy has increased. I still walk 2-3 miles a day but it’s getting more difficult. In addition my anxiety has increased…as has shakiness at times. I’m assuming the autonomic involvement is the culprit in a lot of this. How long have you had the autonomic involvement? I’d say mine was tested for 4-5 yrs ago.
When I first get up it’s at its worst it seems…
Steve

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Replies to "Hi…I have neuropathy…also with some autonomic involvement…I’m 62. My balance has declined and fatigue/lack of energy..."

Hi Steve - do you mean "get up" in the morning, or get up out of a chair? I definitely feel bad in the mornings. I rarely feel rested, and it takes a while for my body to adjust from sleeping to active. Then the dizzy spells start. So I find that I don't really feel well enough for dr appts, exercise, etc until at least late morning. This is so different from the person I used to be. It also means traveling has become impractical. I've traveled alone to NYC to visit my sons for the past 10 years. After my last trip, 18 months ago, I said "no more". I was sick for days. While in NY, I had dizzy spells, and bouts of diarrhea - in public places. The old me is gone, and the new me is controlled by pain, weakness, fatigue and my autonomic nervous system. If I need to know when the changes occurred, I can just look at my Facebook memories, or my old calendars, to see how much my life has changed. I am 64.
Wow, I'm really down this week. I do a remarkable job of getting through life with a decent attitude. Sometimes, like now, I do give in to self pity.