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CT scan safety

MAC & Bronchiectasis | Last Active: Nov 16 7:31am | Replies (16)

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@irenea8

She has such a good reputation. I guess I would just make sure she understands you are so symptom free other than the very annoying throat clearing thing. And that your PF tests are so good. I know she has told people with Pseudo not to treat unless sick but with MAC it is probably different. I do not have MAC as far as I know. But my Pseudo is awful and I live with exacerbation daily (very bad symptoms compared to most). Have tried some of the nebulized antibiotic option for it, afraid to try the oral choices due to other co morbidities. IV in hospital on something like Meropenem is my only choice it seems. Still high risk of colitis and C Diff with it. In my case treatment is obviously needed but side effects and co morbidities scare me off.

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Replies to "She has such a good reputation. I guess I would just make sure she understands you..."

Yes she does...good reputation. Going to message a couple of questions to 'them', meaning I get messages directly, only, from the nurse(s). Not sure if my message/questions ever get past the nurses. They are a help however..... and her main nurse has been in pulmonary for years.
I understand your thoughts with side affects. That is one reason I am hesitating just yet.
PCP and then eye doctor tomorrow for baseline. No matter my decision to take or not take, glad I did get the hearing baseline, moderate hearing loss both ears. That was a surprise.
Hope your daily exacerbation is mild tomorrow, if that is even possible.
Barbara