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MAC patients who have taken antibiotics

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (30)

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@debregecz

Barbara, I had a routine chest x-ray at age 65 that showed nodules. I was then referred to a pulmonologist who suspected MAC, and since I wasn't symptomatic, we simply monitored for a while. After I had done some research, I mentioned that CF ran in my family. He then did a bronchoscopy and tested for CF. I was positive for MAC and was a gene carrier. My nodules pretty much came and went for a few years. Last year my Husband of 50 years passed, and I was told one of my nodules had gotten larger and I was referred to an Infectious Disease MD. He suggested the NJH study. I had more testing and a CT scan, which also showed my breast implants from a previous bi-lateral mastectomy, had ruptured. Good news is I was able to schedule the surgery until after my trips. I am now recovering from that surgery (5 days ago). Thankful for my friends and neighbors!!! I have been trying my best to live my life but still be cognizant of my MAC. It can be somewhat challenging but doable. I have traveled quite a bit this year: Boston cruise to Canada; Train from Quebec to Montreal and bus to Niagara Falls; Denver (Santana concert at Red Rocks; Wisconsin and Guatemala. Hope to start planning my next trip soon! Hang in there!! A can do and positive attitude helps! My Mom is still alive at 93 and most of my relatives lived a long life! Oldest was 104! We have a lot to do yet!

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Replies to "Barbara, I had a routine chest x-ray at age 65 that showed nodules. I was then..."

Interesting and thank you for sharing....nodules came and went for a while....I take it, if I understood correctly that was previously and without antibiotics.????
We all have some type of stress at times and it can cause havoc on our bodies...as you probably know. Stress might have brought on the nodules again during that period of time before losing your husband . So much changes after a loss such as you have been living with. Good for you taking those trips! You go 'girl.'
Wonderful hearing where you have been this year. All the good memories from your trips are probably helping recovery from your surgery. I have looked at the Boston to Canada cruise. What ship did you take?? I was in Quebec and Montreal (World's Fair) in the early 60's and would enjoy another go around up there.
Yes, thanks the positive attitudes are what help get us through all. So far I think I'm still there with that. Just needing to decide about starting the antibitotics for MAI with my not having but one outward symptom....chronic mucus clearing nearly all day long. Clearing the throat in public is uncomfortable for me and one does get surprised looks in wonderment from stangers....I can understand why. So I am trying to figure it all out so I might follow your lead and travel some more.
Barbara