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I am at a loss as to what to do next....I initially reacted poorly to Fosamax including swallowing problems and MD stopped it right away, then I moved to Reclast and 2 year scan showed significant bone loss, I then moved to Prolia and failed. Then moved to Evenity which I just completed in October the bone clinic in my health system is recommending Reclast next. I am struggling to get them to schedule a DEXA post Evenity even though it is recommended and my prior year DEXA interpretation recommends followup scan in one year.
I don't know if Evenity worked and I have serious concerns with starting a drug I already failed. On my last DEXA I was at -4.8. I already have 6 spinal fusions from T9 to L2 with stable fractures in T9, T8 and T7 that occurred post spinal fusion surgery.
Any ideas or anyone like me that has navigated this issue?
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@creisch711 it seems like the sequence of meds has been a little backwards for you. A friend of mine went from -4.1 to -2.5 on Evenity though she had not done other meds beforehand. In your situation , with a previous DEXA of -4.8, I would think a DEXA should be authorized or if not (I don't why not) you could pay out of pocket. People here say it isn't that expensive.
Reclast is used to "lock in" gains and perhaps it would work that way for you even if it does not build bone effectively. I don't know- something a doctor could look into. Is there a reason for rapid bone loss that could account for the bone loss exceeding bone density gain on Reclast?
I am not sure about Tymlos after Evenity but another thing to ask about. I did Tymlos, then Evenity (part course) then Reclast and hope to go back to an anabolic.
I have 7 spinal fractures so can relate to you! Get that DEXA and let us know!