I need contact info the Hereditary Hemochromatosis Mayo Florida clinic

Hi @leedajoy, here is the information for the Hereditary Hemochromatosis clinic in Florida. Open the link and at the bottom there is a queue for Requesting an appointment!
https://www.mayoclinic.org/departments-centers/hereditary-hemochromatosis-clinic-in-florida/overview/ovc-20357746
I hope this helps. Have you or other family members been diagnosed with this blood disorder?

Since you asked, my Paternal Grandmother and Maternal Grandfather. By family history and Iron Panel it seem possible to have had Hereditary Hemochromatosis.

My Father's mother had crippled hands later in life (? after menopause). Iron Fist perhaps? Born late 1800's.

My mother' father died of some liver condition, he was unable to sleep lying down, slept upright over the dining-room table, no history of Alcoholism, he died in midlife. Possibly enlarged liver cause of death. Born late 1800's.

And my son, now age 50, was tested with 23 & Me several years ag and was found to have the gene and to be a Carrier related to Hereditary Hemochromatosis.

I have many of the vague symptoms that are on the list for Hereditary Hemochromatosis, HH.
My Iron Saturation is over 45%, it has been tested twice and is was 84% and 93%.

I have had Cardiac Tests that are negative for circulatory blockages. I am waiting for input from my cardiologist, likely when I see him again in 4 months from now.

He has discussed his findings with me and found my symptoms vague. He is not aware of what I have learned about myself as I have learned much in the past 2 months. And suggested that I should look into pulmonary reasons for my concerns and symptoms.

I am 74 y.o. female of Northern European heritage, grand parents were Scottish and Norwegian immigrants to the USA. So perhaps I have the Celtic Curse, as it was once called.

Another question that I need to know is, if a practitioner referral is required to qualify for an appointment, this is the case not for my insurance but generally for the Specialist to accept a consult. I do have copies of my lab reports of 2 Iron Panels that are considerably out of range except my Ferritin that is in desired range. Thanks for responding to my post.

Welcome to Connect, @seeker159. You’ve done quite a bit of sleuthing in your family background that just may give your doctor the information he needs to help with a diagnosis. Or at least point them in the right direction to do the appropriate genetic testing. Especially since your son has the HH gene!

Requesting an appointment with Mayo doesn’t require a practitioner referral but I’ve heard from others that it may be helpful. You’re responding to a reply I wrote for another member, @leedajoy, asking about Mayo’s Hereditary hemochromatosis clinic in Jacksonville. Here is that information for you:
https://www.mayoclinic.org/departments-centers/hereditary-hemochromatosis-clinic-in-florida/overview/ovc-20357746
If you scroll to the both of the page in the link, there’s a Request an Appointment window. Just click there and follow the prompts.

Since you’ve also gleaned all this other information on your own which could potentially point to HH, it might be time to talk to your local physician about your discovery. Do you have other children with any symptoms?