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MAC patients who have taken antibiotics

MAC & Bronchiectasis | Last Active: 4 days ago | Replies (30)

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@lvnl

Hi @debregecz, we are in the same study :-). I'm going to NYU in NYC. I'm in month #2. Do you have any signs you are getting the Arikayce?

I take the antibiotics before I go to bed and probiotics in the morning. So far, so good.

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Replies to "Hi @debregecz, we are in the same study :-). I'm going to NYU in NYC. I'm..."

I thought I was responding to one person (Barbara) but see you are another! I really don't know what the signs would be for the Amikacin?? I do cough quite a bit after the treatment and my voice is rather raspy now. I simply take swigs of the Kefir throughout the day and try to take my meds and nebulize in the morning after my walk. I now wear a mask doing yardwork, no hot showers, hot tubs, saunas or running thru the sprinkler. I live near the coast, and we have a community saltwater pool. I am having my tankless water heater cleaned next week and the temp raised to 135 degrees. I recently went to Niagara Falls and wore a mask much of the time. Cruise ships have in room refrigerators, and you can request handheld shower wand. Also check out https://connect.ntminfo.org/home another source for information.