← Return to GFR 19. late stage 4 polycystic kidney disease.

Discussion

GFR 19. late stage 4 polycystic kidney disease.

Kidney & Bladder | Last Active: Nov 11 2:55pm | Replies (4)

Comment receiving replies
@tiffanya365

Well, my nephrologist and I decided to go ahead and get the PD Cath placed which was done on Oct 14. From there dialysis reached out and I've been going over for flushes and was set to start the training this Monday. Wednesday tho all of my supplies were delivered to my place. But in a conversation with the nurse there I had stated my GFR was only at 19 and how my labs aren't all wonky yet as we were talking about the different percentages of fluid bags. So then I received a call last night telling me we had to hold off. My cycler has already been delivered to the dialysis center also. My nephrology has already discharged me from his care as I was suppose to start seeing the one at the center.
My other diagnosis is congestive heart failure; which is in an early stage. I do not retain fluid as of yet either. But I do have a harder time controlling my blood pressures even though I'm maxed out on Lisinopril.
As far as transplant, I am going to their center the beginning of next month to do the health evaluations to finalize getting on the list.

Jump to this post


Replies to "Well, my nephrologist and I decided to go ahead and get the PD Cath placed which..."

@tiffany365 I started dialysis at eGFR of 14. In my own personal opinion, it should start when a person is ready, and not be guided by a "magic number". You didn't mention who told you to hold off on the training. Perhaps you can reach out to you nephrologist and explain the confusing situation you are in?

For many people, chronic kidney disease, no matter the underlying cause, can be a sneaky beast. We don't realize how it affects us, and the way it makes us feel, because our bodies learn to adapt to the changing condition. It is not until we start treatment that we understand how much better we can feel!
Ginger