He actually said that?? "Pain in extremities" is literally one of the side effects mentioned by the manufacturer, Novartis. Get a new endocrinologist!

I've said this many times: just because there's a medical degree hanging on the office wall doesn't mean the doctor is competent. It just means he went to med school.

dannyanddebbie, I think you posted about the shoulder pain awhile back. I remember because that was the first place I had pain, the first day after the Reclast infusion. Then the pain spread to various places. And I remarked that shoulder pain is kind of unusual since it's not a load bearing joint normally. And the 82 year old lady in the Cureus article also had shoulder pain. Of course it's the Reclast!! I've been having so many side effects and so much pain for a year and a half. And yes I need a new doctor. But why are so many doctors saying it's not the Reclast?? Check out the Cureus article. It was posted here a few weeks ago. Just see how many side effects you have with the lady in the article. I think you'll be surprised.

@dannyanddebbie if you do Prolia you may end up needing to do Reclast to manage rebound loss of bone. Unless you are in your 80's and can do Prolia for life. But if you have any problems with Prolia and have to stop, you will need Reclast.

The problem with osteoporosis treatment is that for many of us- and our doctors- there aren't that many options .

Every anabolic drug- Forteo, Tymlos, Evenity, requires a bisphosphonate, and Prolia requires a bisphosphonate even more urgently due to rebound. So if we cannot tolerate bisphosphonates, doctors have no way to treat us. Many doctors therefore seem to dismiss side effects because their focus is the disease and science has not provided another option. (Nothing in the pipeline either. I feel that more research would be ongoing if this were a male disease.)

It is possible that some of the pain we feel is due to bone growth; "growing pains." But some of us have some sort of inflammatory reaction to a med like Reclast. Doctors will feel that addressing osteoporosis is the crucial thing and side effects interfere with that focus!

It's easy enough to google side effects. I think it would be better if doctors googled, admitted side effects, and had an honest discussion of risk vs benefit. I like it when a doctor says "I don't know what to do" instead of "that drug doesn't have that side effect." Noone's pain should be dismissed.

My doctor does a low dose of everything for me., including Reclast, with IV hydration over an hour's time. Perhaps that approach will help someone.

@dannyanddebbie is Reclast your first treatment? Have you done Forteo, Tymlos or Evenity? If your osteoporosis is mild perhaps you could take a break for a year. That Reclast will hang around in bone for awhile. If your osteoporosis is severe, bisphsophonates are unavoidable at some point and just because research has not uncovered an alternative, your side effects should not be dismissed.