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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 3 days ago | Replies (590)Comment receiving replies
Replies to "Hi Lori, It’s been a tough time because I’ve had some pretty bad nausea since day..."
Ask for EMEND. Tell them Kathy from the City of Hope in California got it after 2 plus days of awful nausea. Zofran and Compazine did not work. I got Emend and my nausea was gone!!! It is good for 72 hours. That darn Melphalan is one tough chemo on the body.
Hi Deb, I hope you’re coming out from the dark side of the moon by now. That’s what I considered the period between transplant and engraftment. 😅 Not sure what your age is but I grew up in the time of the moon landings and there was always that tenuous time when the spacecraft was on the back side of the moon and all communication was lost…then boom! You’re back on the sunshine side of life again.
Let me know how you’re doing! How’s the nausea?
Hi Deb, aw sweetie, I’m going to be pretty frank here…nausea, in varying degrees, can hang around for quite a while. The usual meds given are Zofran, Atavan (lorazapam) and Compazine. I mostly got by with the Zofran but did end up having IV’s of something stronger for a couple of days. I can’t remember the name of that med and can’t find it looking through old notes. But your BMT team has options available to help you get through the worst of this!
Getting through nausea is tough. You don’t feel like eating and sometimes nothing wants to stay down. So little nibbles of food is the best. At this point anything you can eat to get calories down, healthy, or not, is the goal. Protein is essential but sometimes it just isn’t in the program to get that past your lips.
I think you’re in-patient so you may not have the option of your caregiver bringing in outside food. Order ahead from your food menu of things you can snack on at night after the kitchen closes. I had Rice Krispie bars and Banana bread on hand 24/7 at the suggestion of my dietitian.
My BMT floor had a kitchen for patients where we could have ready made sandwiches, puddings, protein shakes like Ensure and Ensure juice, little cheese sticks, fruit, etc. but honestly I couldn’t eat much at all. My husband prepared little containers of ‘bites of food’ for me. Little squares of sandwiches, cheese, crackers with cheese, cookies, small cuts of broiled chicken breast, etc. whatever I could get down. When I was back at my lodging, Lactaid Ice cream filled the bill as a base for smoothies. Tons of calories, proteins, fats and calcium. But the nausea for me lasted months. Not everyone has lingering nausea though!
The 2nd week after the transplant is generally the roughest week when blood numbers plummet and before engraftment happens. Your body will be fatigued and weak and it’s not unusually for the mental attitude to wilt a little…difficult to remain perky! 😉
So you may have a few more days of feeling pretty loagy. Once you engraft, generally the worst of the flu-like symptoms start to improve! The white blood cells start circulating and help with healing of the damaged tissue. Guts can improve, mouth sores, if any, tend to disappear and fatigue lessens.
It really does get better, Deb! So, hang in there and if you need to talk I’m here as well as @katgob and so many others who have gone through the process. This is the toughest but most rewarding thing you’ll ever do! But it is worth the challenges you’re going through right now. ☺️