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GFR 19. late stage 4 polycystic kidney disease.
Kidney & Bladder | Last Active: Nov 11 2:55pm | Replies (4)Comment receiving replies
@tiffanya365 Welcome to Mayo Clinic Connect. Generally, dialysis is started when eGFR is about 10. Sometimes it is greater, but a lot depends on how an individual is feeling. In my case, my eGFR was 14, and my co-morbidity is multiple myeloma. I was feeling poorly, was already in treatment for the myeloma, so we decided to go ahead and start dialysis. For me, PD dialysis was the right move, and I have been on it since Sept 2022. How are you feeling?
Once you reach eGFR of 20, you can become eligible to be considered for transplant. Have you been able to connect with a transplant center to get started on the process, yet?
Having a good medical team who will support you and answer your questions, is very important. Has your team given you specific details? How has your eGFR been doing, as far as dropping?
Ginger
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Well, my nephrologist and I decided to go ahead and get the PD Cath placed which was done on Oct 14. From there dialysis reached out and I've been going over for flushes and was set to start the training this Monday. Wednesday tho all of my supplies were delivered to my place. But in a conversation with the nurse there I had stated my GFR was only at 19 and how my labs aren't all wonky yet as we were talking about the different percentages of fluid bags. So then I received a call last night telling me we had to hold off. My cycler has already been delivered to the dialysis center also. My nephrology has already discharged me from his care as I was suppose to start seeing the one at the center.
My other diagnosis is congestive heart failure; which is in an early stage. I do not retain fluid as of yet either. But I do have a harder time controlling my blood pressures even though I'm maxed out on Lisinopril.
As far as transplant, I am going to their center the beginning of next month to do the health evaluations to finalize getting on the list.