Had my 3rd Reclast infusion in August. 2024. Never had side effects other than minor ache/headache within 3-5 days after. Pls note: I was given this dosage 6 mos early because I fell on ice in January and broke my wrist, so was told I should have a booster. Three weeks later, I started experiencing bone/joint pain - debilitating joint pain. Literally, had to fold myself out of bed, car seats, plane rides. And all over - from feet to hips, shoulders, neck, back fingers and toes!
My bone specialist said "usually only get side effects within first few days; check with your PCP." I waited a few mos., (there were some days of less pain here and there), then saw my PCP who ran tests (even Lyme and auto-immune) - all negative. Last week, actually had a few days were pain was much less; I was hopeful. Thursday it started again - pain level 9 out of 10 (and I have very good pain tolerance)
Yesterday, I wrote to my Bone specialist and sent all the tests. I asked if it could be bone growth (maybe wrong term). She replied "Reclast is not a bone grower and very inert after 2 das. The fact that you tolerated 2 prior infusions concerns me that this is a red herring..." So, she ordered me several tests to have done this week.
The fact that this started 3 wks after a "booster" infusion, forgot to mention jaw clicking which I never had, makes me feel this is related. Hoping it's nothing else -- stay tuned.