Connect
← Return to Can we get cancer insurance after diagnosis?
Discussion
Can we get cancer insurance after diagnosis?
Pancreatic Cancer | Last Active: 4 days ago | Replies (26)Comment receiving replies
I too was diagnosed with PACC stage IV over 12 years ago. If you are not already aware, the US expert who has the most experience from studying and treating PACC patients is Christine Alewine MD, PhD and the NIH-NCI. She is conducting a study and also available for patient consults. I enrolled in her study a few months ago. Here is the contact info:
https://irp.nih.gov/pi/christine-alewine
Replies to "I too was diagnosed with PACC stage IV over 12 years ago. If you are not..."
@stageivsurvivor you are a participant in the study? Are you having signs that your cancer is returning?
Connect
Yes, sir, I was aware of that clinical study and was released from it at the end of Sept. I was diagnosed as stage 4 at the end of Aug. 23 and went on Folfirinox for 12 cycles. Tumor, 6 cm. on my pancrease, several lesions on my omentum, and 3 tumors on my liver. At the end of Apr. this year, the only remaining tumor was one on my liver. Started the trial at the NIH with Olaparib in June, but the remaining tumor on my liver increased in size and I had to be released. Had another laparoscopic procedure 2 wks. ago to verify no cancer in my abdomen and there still was none. Biopsy on the liver tumor showed it as still PACC. I'll find out on the 12th from my cancer center how they've decided to proceed against the liver tumor, but they seem to leaning toward SBRT. And Christine Alewine is the best.