Hi Terry....I'm sorry, I had not checked my email in about a week to see this. I find this site not the most user friendly, but very helpful to connect with other Girdlestone patients. I have become friends with several of them through Facebook and now we chat via Facebook Messenger. There is also a way to send Private message on this forum too and I will send you this same message that way. If you want to try to "friend me" on Facebook, it is under Cindy Showerman Marsh. If I don't know your name or recognize the person, I won't except the request though. Too much spam?hackers out there. It sounds like you are getting along pretty good for only 11 months out, so keep up the good work! I'm happy to be available for questions you may have as I totally understand what you are going through......Cindy