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Anyone have cancer with unknown primary?

Cancer | Last Active: Nov 9 1:19pm | Replies (155)

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@gisellef

Hello:
My question is why your doc didn’t request PET scan in the first place instead of trying to get it as a last resort. PETs pick up hot spots in the body that might not be seen using other diagnostics. I would suggest pushing a little harder or if necessary pay for it out of pocket. For proper treatment you need to know as much as possible about the situation.

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Replies to "Hello: My question is why your doc didn’t request PET scan in the first place instead..."

@gisellef, this is a new oncologist for my wife, she's given up on the others for reasons including what you say, that they didn't even do the basics needed to locate the cancer. She did not want me to get into it with her old docs although I was more than willing. I'm going to find the cost of a PET CT and will pay for it myself if our final appeals don't work.