Hi Stef. I too am desperate…it is definitely affecting my quality of life. Much of the time I can manage the pain but sometimes it’s too much. I did do dry needling for about a year but that wore off. Since the beginning if it’s too much I will eat a gummie. I keep them by my bedside for when I am woken up by it. It’s the best remedy I have found. Good luck with your search. Know that we are all understanding and want to find a cure!