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NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?

Neuroendocrine Tumors (NETs) | Last Active: Nov 29 3:06pm | Replies (9)
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@amariewilkinson

I had a random and surprise/very rare diagnosis with Mayo in Rochester Minnesota 3 years ago. I had 2 cancers found in the rectum in a really bad spot. The tiny bit of Neuroendocrine Carcinoma (NEC) found was a surprise to my 2 Mayo surgeons too after removing it first and saving my behind from the permanent colostomy bag. I then did all the chemo and radiation plus hyperbaric later to undo the ulcerations caused by radiation. Please reach out if you wish!

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kbtexan | @kbtexan | Nov 29 6:58am

Hello,
Can you tell me what caused you to even look at the rectum for Neuroendocrine Carcinoma? I have been having excruciating pain on my right side of the lower rectum for years now and only sitting on ice gives me any relief. I also have two Neuroendocrine tumors on the top of my Pancreas, with one surgery in 2015 while in a clinical study at NIH. Having MRI and CT scans, along with the Gallium 68 Scan every year and no one has been able to tell me what is causing this terrible pain. Many thanks! Ken

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