← Return to Diagnosed with sarcoma? Let's share

Discussion

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 days ago | Replies (845)
Comment receiving replies
@colleenyoung

Hi @fionap, I add my welcome. You may wish to connect with other members in this discussion focused on chondrosarcoma.

- Does anyone have chondrosarcoma?
https://connect.mayoclinic.org/discussion/chondrosarcoma/

Jump to this post

Replies to "Hi @fionap, I add my welcome. You may wish to connect with other members in this..."
fionap | @fionap | 4 days ago

I had a large chondrosarcoma in my pelvis removed in 2015. No symptoms at all. Discovered during other routine examinations. The superior pubic remus bone was removed and some of the abductor muscles. Clear margins. All fine to 2019 then x rays regularly thereafter. In July 2023 again no symptoms but as the result of a CT scan for possible diverticulitis it showed again. No x rays had show it! Biopsy in August 2023 showed recurrence of grade 1 slow growing chondrosarcoma.
Watch and wait. MRIs every 6 months. In the last 12 months it has started to grow again and I am planning surgery to debunk the tumor in February

To remove it totally would mean the loss of the hip joint which I will not consider

Does anyone else have a similar situation?

VIEW AND REPLY