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Anyone have Pancreatic Acinar Cell Carcinoma?

Neuroendocrine Tumors (NETs) | Last Active: Nov 8 7:51pm | Replies (17)
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@colleenyoung

@gsterle, what a hopeful and helpful message. Will you be on the oral PARP inhibitor Lynparza as a maintenance therapy?

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Replies to "@gsterle, what a hopeful and helpful message. Will you be on the oral PARP inhibitor Lynparza..."
gsterle | @gsterle | Nov 8 7:51pm

I am currently taking 250mg X 2 daily for the past 5 months with good results (tumors are shrinking and nothing new) and minimal side effects (fatigue and dry mouth). I have a good appetite, try to exercise at least 30 minutes daily and sleeping well. I do have some anxiety issues at times. Currently I have CT scans every 3 months and blood work with DR consult every 2-3 weeks. So I am 14 months post surgery and staying strong and hopeful.

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