Hi @breck
Thank you for your response. Sorry this is so scary and you have breathing issues. Also sorry to hear your original care team did some damage.

My tumors are very very slow growing. They were first found on a CT scan 16 years ago and based on symptoms have likely been there at least 30 years. I take octreotide injections that have really helped the chronic coughing and shortness of breath. My case is being managed well by a NETs team at a university hospital near me. I’m glad you’re at Mayo now with a team familiar with lung NETs. My team tells me we’ll be partners for a very long time. An experienced NETs team makes a difference. Prayers for you. ❤️