Hi thank you so much for your response..my upper limbs got affected two years back..while in rest position I can lift my hands to extent but on sitting position I cannot ..please tell me is there any improving treatment in mayo clinic..Regards
Rama

Polymyositis can effect the upper limbs. As well, inclusion body myositis can effect the muscles of organs (throat, lungs, abdomen). Unfortunately, I watched all of these issues with my brother.

Hello Rama, as I understand current/recent treatments your age is certainly a plus for you. It seems that my brother had this disease well before it was recognized -- perhaps 2 decades or more. Just a very slow weakening that his doctor felt was due to poor physical fitness. So, good for you that you have some treatment ideas at your young age. I'm sure you must be frightened by the illness and probably have read enough to put you in a dark place. However, unlike by brother who did not reach out to even as much as talk about himself, you have done yourself well by contacting others. This is a very strong asset for coping. Of course there are dark issues threatening, but I can tell you that my brother lived a long life before he was incapacitated -- fully participated in raising his 2 children; worked full time until he was 60y/o; enjoyed his life despite circumstances. He was also hopeful that "any day" there would be better research done on myositis and that some help/breakthrough would be around the next corner. Hopefulness. I admire your strength and your ability to advocate for yourself.

Rama, you might take a look at the website myositis.org. It offers many different directions from up-to-date information, group talk, latest clinical trials. They also sponsor web programs that you can signup for. Research papers that are referenced can offer further reading. Give it a try, Rama, if you haven't already.

My doctor has put me on methotrexate to attempt to slow down the muscle eating cells. May be working. maybe not?