Hi,
After having all those symptoms for years and been poked prodded and investigated from both ends, all manner of diagnosis have been theorised through my journey, with no actual proof to back them up. Latest diagnosis is Autonomic polyneuropathy (ANS) which gives me SIBO regularly. This came about from gas testing the stomach, finally some hard evidence. It took an astute ED Dr to recognise the Autonomia symptoms, otherwise I would still be none the wiser. With no treatment for ANS I have been able to throw away all the medication that was supposed to deal with the symptoms and now concentrate on SIBO medication when required. With no hope of stopping the symptoms I'm left dealing with them as best I can in my own way. Whatever works for me is what I do to get though the days. Having good days is now a thing of the past with each day a challenge to get through. Some days it is sitting it out waiting for a "better" day to come. My days are spent trying to manage the corrupted digestive system which has become a permanent feature of life for me and trying to ignore the other symptoms ANS causes randomly. I'm left in limbo unable to get the help I would like, but acknowledging that there is no help available anyway. All I can do is wait for ANS to stop the heart and end this invasive disease.
Cheers