That is interesting. I am stage 4b (spin, ribs, pelvis, and femurs). I have 10 radiation treatment to my spin and 5 to the ribs to shrink the tumors. They put me Eligard injections every 3 months and Nubeqa 600mg daily. I had 10 chemo treatments and I would have done 12 if my doctor would have allowed it and I get Xgeva injections every 6 weeks. But I remain on Eligard (ADT) injections every 3 months.
I was diagnosed July 27th, 2022 and I am still undetectable. My Alkaline Phosphate was through the roof when I was diagnosed. It was somewhere in the 170's. It remains super low for now - 35, 36, or 37. So right now my doctor evaluates my PSA, my over blood work, and Alkaline Phosphate to track my progress.
I'm living my life as normal as possible. I work 12-14 hours per day. I am a consultant in the computer field and I have several contracts. I spend a lot of time with my family. I'm a grandfather now. Both of my children are married and live in the area, so we spend a lot of time together.
I started getting back into my hobby of playing Jazz Guitar. It took over a year to recover from 10 chemo's. In some ways I still do not think I have fully recovered.
I have a friend that has been in this same fight for almost 9 years. He was diagnosed with stage 4 cancer to the lymph nodes. His PSA recently started climbing and he was treated with targeted radiation to the problem area. PSA is now declining - so I am hoping they killed what came back on him.
If we respond to the treatments men, we can live a very long time with this disease. I pray we all do. I am still hoping for new treatments and a cure.
Thank you Jesus.
Hello, fellow stage-4b tech consultant and guitarist. I got extra radiation instead of chemo (my PCa is oligometastatic), but the spinal compression left me unable to sit up at all for the first few months, and then not for more than a few minutes in a useful position for classical guitar.
Fortunately, my core strength recovered enough for me to practice for playing at my daughter's wedding 10 months after diagnosis and the start of treatment. ♥️