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Anyone have Prostate Cancer Stage 4 with good results?
Prostate Cancer | Last Active: 6 days ago | Replies (58)Comment receiving replies
So you are still on Nubeqa But not Lupron? I’m still on both of them after having chemo therapy and would like to get off, but I didn’t know you could do Nubeqa without Lupron?
Replies to "So you are still on Nubeqa But not Lupron? I’m still on both of them after..."
I know at least 5 people that come to weekly Ancan.org advanced prostate cancer online meetings that have gone with just Nubeqa. Include me, though I have been on Lupron and Orgovyx for eight years, so my testosterone is never coming back.
If you have been undetectable for 18 months to 2 years you should approach your doctor about dropping Lupron? no studies have shown that it works well alone, but enzalutamide has been approved for standalone use.
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That is interesting. I am stage 4b (spin, ribs, pelvis, and femurs). I have 10 radiation treatment to my spin and 5 to the ribs to shrink the tumors. They put me Eligard injections every 3 months and Nubeqa 600mg daily. I had 10 chemo treatments and I would have done 12 if my doctor would have allowed it and I get Xgeva injections every 6 weeks. But I remain on Eligard (ADT) injections every 3 months.
I was diagnosed July 27th, 2022 and I am still undetectable. My Alkaline Phosphate was through the roof when I was diagnosed. It was somewhere in the 170's. It remains super low for now - 35, 36, or 37. So right now my doctor evaluates my PSA, my over blood work, and Alkaline Phosphate to track my progress.
I'm living my life as normal as possible. I work 12-14 hours per day. I am a consultant in the computer field and I have several contracts. I spend a lot of time with my family. I'm a grandfather now. Both of my children are married and live in the area, so we spend a lot of time together.
I started getting back into my hobby of playing Jazz Guitar. It took over a year to recover from 10 chemo's. In some ways I still do not think I have fully recovered.
I have a friend that has been in this same fight for almost 9 years. He was diagnosed with stage 4 cancer to the lymph nodes. His PSA recently started climbing and he was treated with targeted radiation to the problem area. PSA is now declining - so I am hoping they killed what came back on him.
If we respond to the treatments men, we can live a very long time with this disease. I pray we all do. I am still hoping for new treatments and a cure.
Thank you Jesus.