Hello fellow friends above,

I just want to say that I was in tears when reading the posts the 3 of you just posted.

I too feel exactly like you. I was having a bad day today and decided to work on my project that I have been doing slowly. This project involves trying to help long Covid patients be heard.

I know I’ve spoke to you before in chat in the past and I’m not sure if you remember me stating that I was asking questions and getting responses to forward to Social Security administration, different lawyers, that I know, my doctors, and others that help long Covid patients try to get the medical help they need.

I was having a bad day today, and thought this would make me feel a little better. I spend most of my days in bed and only look forward to getting out of the house on my doctor days. If I go out otherwise it makes me crash for way too long, I like you, don’t have a lot to look forward to and just exist. So I figured what I’m creating may help in someway to do more than just exist.

Once I have finished with what I am trying to accomplish, I will post it on the site. It is just showing others how many of us exist, how we feel, and show them, this disease is real. I am so tired of being made to feel like I am crazy every time I mention, I have long Covid. I went to the urologist this past week and explained what I was going through and that I had long Covid. They seem to treat me completely different once I mentioned that, I actually had to call back and get them to update my chart so that I could have their information correct about myself. Very discerning.

I want to thank you again for sharing such a beautiful insight on something that’s not so beautiful. If there’s anything you know, you would like to add besides what you’ve written so far, please let me know and I would love to include it. I am trying to let them know, as much as possible on exactly what symptoms we all have. And also let them know what we’re not getting help with.

I know I personally was extremely active and now for the last three years I have been considered serious LC, but have had issues for 4 1/2 years total and have not been myself . Now I’m 100% disabled. I can’t even walk on my own more than to the bathroom and back. Otherwise I need to use a cane or a wheelchair. I “crash” sleep 12-19 hours most days. Frustrating to say the least.

I hope you all have a lovely evening and look forward to more chats.

Thank you, Kelly.