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Having long COVID, how is your mental health?
Post-COVID Recovery & COVID-19 | Last Active: Dec 26, 2024 | Replies (88)Comment receiving replies
mbryant
You state my feelings exactly! Yes, I know some people are in wheelchairs, some people are in more pain, some people have lost their minds. I KNOW this, but does that invalidate my three year illness that has kept me mostly on the couch? Unable to plan a home project, a birthday, or a trip. I have missed weddings and anniversaries, and milestones that I will never get back.
I have LOST three precious years of my life just existing. I really don’t see the point of it.
The Pollyannas who tell me to be grateful, are LIVING their lives, and I wish they could experience my symptoms for ONE day. I would not wish my symptoms on my worst enemy for longer than that.
I hear this grateful tripe from doctors, friends and family. They need to walk in my shoes, and see how it feels to lose your life, but still be alive.
Replies to "mbryant You state my feelings exactly! Yes, I know some people are in wheelchairs, some people..."
Thank you for your outlook on what gives you hope. And glad to hear that what you are experiencing is on the milder side of symptoms, but still so sorry you have been affected at all.
Sending you healing energy ❤️
Oh how I hear you! My doc was recently giving me the "there are lots of people worse than you *rap" and I hung up on her. That doesn't make this easier. I can't be out of bed for more than 30 minutes and I'm already in pain. I used to be super active. Now active means watching a meaningless movie. Intense ones upset my body as well. Mental, social and physical strain result in infection.
"See how it feels to lose your life, but still be alive." Exactly!!
I try to do something to cheer myself every day.
I try to do breathing and get outside - but it's cold and rainy and I can't walk...
You are not alone. This is so hard.
Nancy
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I completely agree! It so easy for some people to say things like that who are not going through it. And as far as doctors, I’m getting to the point of not even try to get answers. I just don’t understand if I’m telling them, I didn’t have ANY of these symptoms prior to having Covid, what is so hard for them to believe?? That includes people who don’t believe either. So I just made up these symptoms because what, I’m bored? Countless trips to doctors, E.R, money spent is because I have nothing else better to do? And people who know us should see there is change in us, we where working, active, full of zest, actually living life and now some of us barely leave our homes.
There is so much in this world and especially in the medical world that has yet to be discovered and explained, people (including doctors) should humble themselves and think about all the things I mentioned above, that something is wrong! And exactly what you said, trade places with me, experience what I am, and on top of that, no one believes you, how would you cope? What would you do?
But here WE BELIEVE you, we hear you, we understand you and will listen!
I pray you get to that light at the end of the tunnel! I send you hugs and healing energy 🫶🏼